A Rare Disease Day Forum
In honor of Rare Disease Day, Connecticut Children’s, The Jackson Laboratory, and UConn Health jointly present a virtual forum for Connecticut rare disease patients, advocates, and policymakers. Please join us via Zoom to hear directly from those living with rare disorders, learn from cutting-edge physician researchers who are committed to identifying treatments and cures, and for information about available resources for families impacted by rare disorders provided by the National Organization for Rare Disorders.